Colombo, Sri Lanka – As the world comes together to observe World Autism Day on April 2nd, the Shiranee Joseph de Saram Foundation (SJDSF) reaffirms its commitment to advocating for the rights of individuals with Autism and to promoting communities where neurodiverse individuals can thrive.
Autism is mainly characterized by unique social interactions, non-standard ways of learning, keen interests in specific subjects, preference for routines, challenges in typical communications and particular ways of processing sensory information. Unfortunately, autism remains widely misunderstood, often leading to stigma and social exclusion resulting in isolation of both individuals and whole families. The foundation, named in honor of Sri Lanka’s pioneering Speech Therapist Shiranee Joseph de Saram, is dedicated to raising awareness, providing resources, and empowering individuals with autism and their families to reach their fullest potential.
“Autism is a lifelong condition that is caused by genetic variations, either spontaneous or inherited. Nearly 1000 different genes may be associated with Autism. In fact, a recent study of 150,000 people conducted by Mt. Sinai Hospital in New York confirmed that 70 genes are very strongly associated with autism and more than 250 have strong links to the underlying neurodevelopmental differences.” said Praveena Joseph de Saram, Shiranee’s daughter and a Neuroscientist, who now leads SJDSF. “There is no cure, which means the needs of the entire lifespan must be considered and awareness built into the training of medical professionals, educators, employers and even first responders and the justice system.”
The foundation believes that individuals with autism deserve to live with dignity and acceptance and in their potential to make myriad meaningful contributions to society. Through its ongoing efforts, the foundation works tirelessly to foster a society where neurodiversity is not just acknowledged but celebrated.
Key Areas of Focus:
- Supported Employment Programme:The foundation’s flagship initiative aims to empower neurodiverse individuals through structured employment opportunities that incorporate capacity building of inclusive minded employers and ongoing training and support to foster meaningful long-term employment, promoting economic independence and social inclusion.
- Thrive Sheltered Workshop:This dedicated workshop provides a supportive environment where neurodiverse individuals can learn practical skills, build confidence and a sense of community. Products made at Thrive are Good Market Certified.
- Increasing Public Understanding:Through impactful campaigns, educational materials, and community outreach, the foundation challenges misconceptions about autism.
- Supporting Families and Individuals:Families affected by autism often face challenges in accessing resources and support. The foundation is committed to empowering caregivers, educators, and community members with accurate information and practical strategies to help neurodiverse people reach their full potential for independence and employability. They also have a variety of programmes to support the wellbeing of parents and siblings.
“We believe that everyone deserves to live with dignity and acceptance and that people with Autism have a right to the opportunities neurotypical people have” said Consultant Speech Therapist Nayanalie Dassanayake, who now leads the design and implementation of programmes at SJDSF. “Our work is driven by an unwavering commitment to break the stigma surrounding autism and create a more inclusive society where no one is left behind.”
The foundation invites the public to join hands in its mission to create a more inclusive world where neurodiversity is celebrated. Their services to families are free of charge and available in any of the national languages – Sinhala, Tamil or English.To learn more about the foundation’s initiatives or get involved, please visit www.sjdsf.lk or call 0112819310.
